Me, The Motivation, The Love

I am the mother, primary caregiver, advocate, and executive functioner of a now adult diagnosed at birth and childhood with intellectual and developmental delays, autism, low executive functioning, hypotonia, and poor impulse control. For those of you who know...you know. My blog posts include autoethnographic and ethnographic research and writing as well as non-fiction personal stories.

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I have watched and witnessed for 24 years the (absurd) lack of inclusion, equity, diversity, and accessibility that exists in New York State, across every single social pillar upon which all communities and cultures are built. I research and write with the hopes of creating awareness by telling the story of the historic evolution of systematically rooted ableism and bias across all New York State social infrastructures (educational, political, economic and social). I ask and interrogate through a feminist critical disability lens why and how both ableism and bias still heavily affect the current treatment of the "othered", specifically the intellectually and developmentally delayed community. 

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My desire to assist our communities create, offer and sustain programs, services, educational and lifelong enrichment opportunities for every human drives my personal public service mission to strive for true unconditional inclusion, diversity, accessibility, and equity. Volunteering, advocating, collaborating, and consulting with organizations and individuals that help support, assist and empower their communities at risk, underserved, underrepresented and special needs populations is a personal cornerstone to my mission.

 

He and I aim to create an environment where he is able to live his most authentic life, exercising (with assistance and support where needed) the greatest amount of self-determination, agency and personhood, in an environment that seeks and desires the same for him.

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